40 with bleeding disorder attend camp

Kota Kinabalu: The Sabah Haemophilia Youth Camp 2019 will work towards equipping young people to manage the reality of the limitations of living with a bleeding disorder positively and with the least harm to themselves.

State Health Director Dr Christina Rundi said the programme engaged young people to develop a sustainable strategy to enable them to improve their life skills and make positive and informed choices about their lifestyle now and in the future.

“The camp is one of the way to connect, share experiences and obtain information about relevant life and lifestyle choices, including sport, recreation, relationships and socialising.

“It will increase their understanding in communicating about the issues they experience living with a bleeding disorder,” she said at the launching of the Haemophilia Youth Camp from Aug 16-18, organised by the Haemophilia Society of Malaysia-Sabah Chapter at a hotel, here, Friday.

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She was represented by Sabah Health Department, Clinical Service Branch Chief Assistant Director, Dr Jessie Yu Fai Ying.

Rundi hoped the Sabah Chapter would be more proactive and organise more educational camps and workshops in the future.

Sabah Chapter also plays an important role in doing outreach programmes and makes full use of their networking to identify more haemophilia patients, she added.

A total of 40 people participated in the three-day camp, including doctors and volunteers which was aimed to provide better understanding of the disease as well as its consequences.

Meanwhile, Sabah Chapter President Alice Ho said the young participants are always excited to know more on the latest haemophilia treatment and they also want to experience learning outside the lecture room. She said that this is the main challenge for the organisation as they want to provide new, interactive activity but safe for the haemophilia participants.

“Each time we plan for the camp, we will refer to the feedback we received from participants.

“Most of the young participants want the learning process to have the fun element and to experience new things.

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“So this year we will bring them to visit the ocean aquarium at Universiti Malaysia Sabah (UMS) and have a picnic at UMS beach,” she said.

Ho added that they will continue to provide support among the haemophilia community members on mental health, dental care, physiotherapy and networking.

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